re: re: re: re: re: re: STOP arguing!!!
Sep. 14th, 2006   11:53am

How fitting to have this conversation under a thread titled "Stop Arguing!"

I have been visiting this board since my daughter was about 3 years old, she is almost 10. During the past several years I have received great information from many people on this board, had the opportunity to hear from adults in the CAH community, and was able to participate in a few debates myself. I have referred new CAH families to this site, and even directed a friend of mine here who had vaginal surgery unrelated to CAH.

Aimee, you appreciate and respect honesty, so I would like to give you my opinion. In the past, you have given me great insight to possible feelings, worries, and concerns my daughter may experience. Because of things you have shared, I have decided to be open and honest with my daughter about her condition, body, and my choices. I also have not allowed examination of her genitals by ANYONE, except her urologist, and even then, NO probing. For these contributions, I will be forever grateful to you. As I have followed the board in the past year, however, you seem to be increasingly sarcastic with people who are asking sincere questions. I, myself, find your comments very funny. But, I feel like I know you in a sense, from reading your posts for so long. Someone new to the board, might feel silly, dumb, even ridiculed. You have given me the idea (I can’t quote an exact example) that you have felt under attack by parents of CAH’ers, and maybe feel the need to hold your ground as a CAH survivor with valid views. I get that, but in the crossfire, you are catching people, who may be forever scared off of the board by some of the remarks. When people are looking for a CAH community, they are usually seeking advice on CAH. Not their relationships, or if someone in their life is worthy of keeping around. I understand you are intending to be helpful, and not rude, but when a stranger asks you to start examining your life choices, it offends some people. Again, I do appreciate what you have to offer to everyone, especially parents of the future generation of CAH survivors. Please, keep in mind, not everyone is as thick skinned as you and me, nor have the same sense of humor. Maybe taking sarcasm out of some of your responses would offend people less, and make your points that much more valid in the eyes of those who are seeking answers.

Love to all,

Katrina

Katrina
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