Never written ever in sarcasm about this condition that may kill me. (you assumed that)   I wrote my opinion down their to a girl that is resently stated dating someone with CAH. From my own experince sometimes on doesn’t want to tell someone they are recently dating about this condition. Why would someone feel attack by parents? again you assume.

The thing about this that is sad on the rest of your parts is that I gave good info in the thread to Nikki about a doctor really is the best person to answer this question and gave her a link to the main organization that is for CAH. Look at all the people that posted to little nothing me : ) I’m just a sand piper on the beach. If all of you took this energy that was directed toward me and focused it on moving http://www.caresfoundation.org forward and increasing the knowledge about CAH in your community and thus helping poeple w/ cah and poeple that don’t even know they have it ...then how wonderful that would be.

I committed on my one personal feelings about having a condition nope don’t like people to know right off and another person w/ CAH could of wrote something different. I would like to see this board like up with different ideas and opinions. i wrote one way and someone wrote that was to intellectual (I’m not going to talk down to people) and then another person wrote that I didn’t sound my age ( I have a sence of humor) . Can’t gather why you would think sarcasm becuase heyy I have the condition also and understand how it feels...yep do relate my own experinces to the posts just like how poeple that have celiac sprue, thyroid conditions and cancer do.

 Celiac Sprue does cause a rejustment in the family becasue the family is used to things a certain way .... it doesn’t make sense to just talk about the Celiac Sprue BECAUSE FAMILY ISSUES do come up and are addressed. Ok having cancer does effect someones sex life and relationships so it doesn’t make sense just to talk about the cancer it self So why is CAH any different? The thyroid conditions also effect many things besides the thyroid an over lap thus CAH is no different. CAH laps over into infetility and i would love for that to be brought up more after reading how hurt Anon was in another post. Yep talk about many issues because it is conected to a condition. But I get trashed here and it’s because you need someone to vent at. Maybe the feelings about CAH are what ever they are and I’m a good one to directit to. I had a parent write in a email that before she knew about CAH  that she thought ewwww gross chicks with dicks but she also put that she learned alot.  Katrina, I don’t have it in me to write sacasm or to be rude because from society’s view - I ain’t nothing but someone with a condiiton that can be freaky until one really gets what it is then it’s sorta boring unless you really sick and barfing up.    

I’m very up for answering questions and I do - then the rest critic it instead of sharing there views on the first post ....it’s sad and coming from me then that’s really sad ... I do know when you are recently dating someone then you don’t want ohhh for them to think different because of CAH or anything. I’ve had that happen and it hurts but I the other had had others treat you find they don’t bring up the condition except when they are carting your#### into the ER because your really sick.I picked carefully the people that really know about CAH. Not fluffy bunny but is what it is.

Soon,  I’m only going to be on here from time to time anyway because I’m doing things for CAH off the board more and more which is really rewarding. Plus, I’m going back to school for a second bachelor’s degree.  I think this board is wonderful and like a CAH family. I have classical Simple- Virilzing CAH and 11- hydroxylase dificiency which 75% of Classical is Salt Wasting and 25% is Simple Virilizing. The 11 - hydroxylase is only 3% and the rest is 21. The 11 hydroxylase happens 1 in 100,000 sorta rare but Late Onset is 1 in 100 and to me it’s sad that all this energy that is focused to my little posting really - one persons view about something instead of writing their own or alos using that energy to getthe word out about CAH ....Wow  LOCAH  one in a hundred and people really don’t know about it but here you all are using this engery to critsisize a small portion of what I post and also assume and where you might be correct if you  try to assume palms up.  It’sad. 

I don’t have sacrasm but I do have desperate need for people to really understand this condition and luv other views.  I posts helpful links please if someone was sarcastic then they wouldn’t bother to find helpful links.

I don’t have a thick skin Katrina actually I’m a very sensiitve and expressive person. If you have a clitorectomy then you don’t fell worthy to be sarcastic with other people .  If I write one way or the other ? people will always be critical. I could answer something in one word and ...all ya would chant  ...rude...blunt  becasue you need to.