people don’t know about all that is w/ CAH and I know that I don’t. Anyway went looking for what your post and Yep, do think Endos are the ones that have the main scoop on something as rare as the 17-alpa- hydroxylase deficiency ...I found this about it. http://www.clinicaltrials.gov/ct/show/nct00172510   Maybe if you could explain it more than that would enhance CAH info.

all the best