re: Why?
Sep. 15th, 2006   4:56pm

The reason why you can’t find someone to communicate with who has the same form of CAH as yourself (17-Alpha Hydroxylase) is due to it’s extreme rarity!  CAH in itself is relatively rare (affecting approx 1:15,000) with 21-hydroxylase deficiency  accounting for 90% of all cases .  With 17-Alpha Hydroxylase  affecting less than 1% -  is it any wonder that it is difficult for you to find anyone else with the same form of the condition as yourself?

There are a lot of similarities in all forms of CAH and I don’tbelieve there is any difference in the ’normal ranges’ for blood test results, whatever form you have.  So ask away - I am sure the folk on this board are only too happy to share their experiences and views.

Terri
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