Dear Julie:

Thank you for the time and effort that went into answering my post.

I now understand why you take the brand name cortef vs the hydrocortiosne and it’s good that it helps you to have dosing that way with the 5mg tablets.

My apologies because I thought you wrote something about hair falling out and I’m always interested in that as I have more hair falling out now than I did when I was under going cancer treatment two years ago.  

I’ve taken prednisone for 33 years between 5mgs and 20mgs over the years and hydrocortisone for the last 3. I break the 20mgs tablets up in half and then again to get 5mgs. I take 10mgs around midnight along with .112mgs of synthroid, 10 mgs between 7 and 8 am.  I work from 8 pm until 8 am or 12 am until 8 am 3rd shift. These hours work out well for me and I’m good at making sure I have what I need to help the adrenal and thyroid glands function while at work.

I don’t bother with the pill cutter as I get a good break snaping in half  (I don’t suggest this method for other people) and as a kid would break the pred in half with my teeth. I do all this on auto pilot but taking the synthroid was an adjustment because I just didn’t want to add something else and along those lines - taking the fosomax for osteophrosis is nope just don’t want to but I’ve gotten in the grove for it.. I guess I’m ticked because of the cost but I do get samples and the less expensive calcium supplements I can’t digest.  

Thanking for sharing about the gall bladder questron because I had my gall bladder out in Jan 2006 but haven’t experience the issues you have and I am sorry to read about that as this must be difficult for you.  I didn’t have much diarrhea after the gall bladder was out but before being diagnosed with Celiac Sprue- I thought diarrhea was normal all the time.

Thank you for the suggestion of the adrenal book and I would imagine that this will benefit many parents on this board for their children with CAH. I’ve only had 3 adrenal crisises in my whole life and know unfortunately how it feels and what to expect but thanks again for the web site and the number which will benfit many that read through these posts. Even though you don’t have CAH, this is an organization for the condition http://www.caresfoundation.org and maybe would be of help for you as well.

It was nice to post with another person that has different chronic medical conditions like I do and I wish you well.

Thank you for your time and consideration in reading this reply to your post. 

 

b.pebble