aimeeDear Diane,
I’m sorry that you have to go through this. I have Simple Virilizing CAH along with other medical conditions but not this one that I know of. Thank you for posting this and not sure if it could be in the realm of CAH related but maybe indirectly. I found this link for my own curiosity about this and maybe it will help http://www.umm.edu/ency/article/000912.htm.
Best Wishes