I have a SWCAH daughter who is now 2 and a 4 month old SWCAH son.  I too went on dex the week that I found out I was pregnant with my son.  I had a CVS done at around 12 weeks, but they were unable to test my placenta, so basically, I put my pregnancy at risk for nothing.  My husband and I were very disturbed and emotionally upset about this.  When I found out, through ultrasound, that we were most likely having a boy, I weaned off the dex and decided against further testing (amnio).  We figured we would test him at birth.  When he was born, they drew blood on my son but it took up to a week for the results.  They were able to test his sodium levels for immediate results, and they all came back normal.  We thought that this was a good indicator that he did not have CAH.  When he was 5 days old, we hadn’t gotten the CAH results back, he stopped eating.  I took him to the doctor and she said that it was normal.  He also lost over 1/2 a pound in one day.  I knew this wasn’t normal.  That night, I didn’t feel comfortable going to bed with him being like this.  We also noticed that his breathing seemed labored.  We decided to call the nurse on call, and she sent us to the emergency room.  Once there, they tested his potassium level and it was discovered that it was more than doubled what it should have been.  The ER doctor said that they had only seen 1 other child with a level this high.  They pretty much told us that we were lucky he was still alive.  Anyways, turns out he does have SWCAH and he was going through a crisis.  It scares me to think that we were going to go to bed that night, and he probably was only hours away from dying.  If I had to do it over again, I would have had the amnio, even though we found out we were pregnant with a boy.  This would let us know ahead of time about CAH and we would have started treatment right at birth.  We thought we were doing everything right and didn’t want to risk miscarrying due to the amnio.  Turns out, he was closer to death that day due to us not knowing.