When my daughter was born and she had the ambiguous genitalia, the doctors was unsure as to why so they did an ultrasound that next day and found the enlarged adrenal gland so they called over to the childrens hospital and spoke to the endo over there and he advised he wanted her over there so that he can run test and watch her as he suspected CAH.  The doctor at the hospital she was born at sounded unsure of wether she would live or not she said she was not that familiar with it but she does know it can kill. That scared the living day lights out of me, I was just crying and crying. They took her over to the children’s hospital and even though I had just gave birth that day before they let me out of the hospital to go over to the hospital with her, so when we got there they had already assessed her and we spoke to her endo and he stated to me she should live a normal healthy life and a normal life span.  That made me feel better but when I keep seeing people kids keep passing away due to CAH that makes me sad and afraid all over again. Was anyone else told their child would live a normal life span or what?