SueMy husband and I also really enjoyed the conference. We also drove from Maryland (made it into a little vacation and saw the Statue of Libery and Ellis Island on Saturday). What I like most was talking to other mom’s that were there with their young children. Our 14 month old son was with us and it was nice to see other children around his age. And also to see the older children and adults that were there and dealing with this condition. My husband and I got most excited about the 2 other drugs that are in trial right now and have extremely high effects of reaching expanctant height. Unfortunately, I can’t recall what they are called, but I’m sure it will be in the upcoming CARES newsletter.
Susan O.