I have a 13 year old son diagnosed at birth with SWCAH. He has been

up and down and began early puberty about 1 1/2 yrs ago. Endo wanted

to put him on Lupron but insurance would not pay and shots were $1200 every

28 days. We decided not to do it. I prayed about it and had this feeling it was

not the right thing to do. Son is 4’10", shortest in his class, some girls are already

5’8" in his class. We opted this summer to try Letrazole and he had severe

side effects. Depression and suicidal thoughts. We immediately took him off and

sought treatment for this. He is on Corted, Flourinef, now Zoloft and Respirdal and

also acne meds, he has acne from the puberty. We had a Dr. visit last week and

his endo was struggling with treatment. He informed us my son is not where he

wanted him to be and my husband asked the question "what do you think his

final height will be" and the Dr. said 5’0 or 5’1. We were devastated. Did not have

a clue this was coming. We have opted for aggressive treatment while growth plates

are still open. Dr. wanted to immediately start him on growth hormone therapy. So,

now we have opted for this, which is "like way more expensive than you can even

imagine" and now are going on Anastrazole. This is also an estrogen inhibitor like

Letrazole. We don’t know if this will work but are praying for the best. The dollar

amounts of these treatments are just astronomical. If you are not destitute or rich,

how do you pay for treatment?! Please pray for us.