Hi Debbie, 

   I have Simple- Virilizing CAH and I like to eat, drink and be merry......also eat to block out the feeling of having CAH at times and the treatment/exams and the "Oh, it’s just so easy to manage and your strong " by people that don’t have the condition or anything... I think.

    But ,I have lost 75 pounds in the past and this isn’t sarcastic but people will judge it this way ...but the only way that I really lost the weight and I would never admit it anywhere but here is that I lost the weight by working up a sweat where my hair and clothes were wet also the way is to really be realistic with what you eat.

    I also have a thyroid issue (genetic, take synthroid) that is supposed to keep the weight on but I tried it also and working up to a level of burning fat which for me means doing something for at least to hours and eating pretty much all veggies and lots of water with a little chicken or fish then I’ll lose weight but not starving myself either.

   The thyroid sites will tell ya - the ones where people actually lose weight is that one really must exercise for at least 45 min but for me it is more to break into a sweat. They don’t call it Endocrinology and Metabolism for nothing and I think my metabolism is like a snails.

 

    I’m not really into weight loss because I actually like my body with some weight on it but diabetes is looming and I don’t want a third endocrine condition or that toothpick NP giving me a thin I told you so smile. This was the same women that was happy that I lost 30 pounds even if it was from having gyno cancer and not being hungry.  You going to lose more weight she chirped and I was my gosh woman ... I’d like to get through this cancer treatment. I just gritted my teeth and smiled - ate more to spite her during cancer treatment I shoved in the food : )

    But, again need to lose weight because I know my fate is diabetes and that is enough to drop the weight. I’m not comfortable at a lower weight because of a few issues - Men but men are there with being fat also ..really good looking men too - go figure and bad enough being slice up to fit into their world...so we can getting married (family board) and get busy. And I don’t like women who BEING THIN is everything and sliced up to fit into their world but those are my issues and not theirs. Yes, why is this good? I got to the root issues of why I like  being fat and then thought of the reason that I didn’t and that is the very real possibility of having diabetes. Ohh, yaya  this is big ! one must find something they like and work to the having more endurance with not starving yourself. I for example like speed walking/jogging  but also am toying with cardio tennis- never did tennis and always good to try something new.   

Good luck with all this and I do now how hard it is to lose weight but I also know what it is like to get a look from some skinny NP. I asked the woman when I forst went there about any diet tips thinking cool ...an NP that works with an Endo sooooo she’ll be able to support, help, and encourage about diet tips but all i got was a looking down her nose at fat me with CAH was " a you should" when I asked about losing weight - I thought gezz what is the point but I have wondered about CAH and weight loss. As a kid when I was naked being pawed by the endo and his students - it made me angry that they were so interested in my weight also and I wasn’t that fat as a kid but would eat out of anxiety after dealing with them but I would lose the weight  also in the summer because I was active. For me it was putting some things to rest from the past to really be able to lose weight (they did say they were sorry)- it doesn’t help if you walk three miles and then go finish off a gallon of ice crean or have yeah 7 kalua and creams.

Oh yes, you have to look at your ethnic background : 0 I’m short but came close to my correct height and I’m German/Belgian thick farm stock - I look like a St. Paully girl, I’m not ment to be a thin whisp of a woman . I have a booty, thighs, and fill out more than Hooter girls but have this fat at the stomach that is unhealthy - I call it the cortisone belt and that it what will lead me to diabetes and oh so much more I’m borderline for a fatty liver and weight i think causes pancreaus trouble too.

I hope you can take something from my post that will help you on your weight loss journey but like yourself all the way through it. And, stay away from the bread : P

I aways wanted to do something w/ CAH where we could support each other with weight loss.

Anyway, if you haven’t found me:

1) in need of theraphy.

2) increasingly sarcastic.

3) or my post jiberish or is it giberish? j and g’s  I just don’t know ...it’s j  jib.

4) manic. 

5) blunt, rude , crass.

6) the lesser of the two evils.

7) I scared you or made you cry.

and anything else that I forgot - then please write back and just know I wrote this to show solidarity in that I know how hard it is to lose weight and my heart is in the right place as I wrote it. I often think that when we are fat? that we talk ourselves into it even more and then take on that roll  (yes, a buttery roll ummmmm butter and then like um throw in some garlic.. for sure )   Ohhh more stuff ..I had to come up with a favorite heathy comfort meal to replace the one that would pack on the calories and last but not least try not to eat after 5: 00 pm.

I never went to med school nor am I a SALT -WASTER and any that you do must be under an ENDOCRINOLOGIST direction.

Good Luck,

Aimee