Brittany~

          I think understand what you want to achieve and it could be a great idea with a little different format but I’ll touch on CAH first.

           I’m not sure how you came upon this site but I think the people you want to reach are going to be elsewhere. Although CAH is prettywell a lifelong condition from diagnosis it’s very managable. With daily meds most of our kids live very normal lives, you wouldn’t know from seeing them anything is wrong. Aside from extreme illness’ our children usually spend very little time in the hospital. Blood draws which can be monthly, quarterly or even yearly depending on age are not much more than regular Dr. visits, in and out. Some parents opt for surgery in little girls with CAH as physical anomolies sometime occur,(not looking for any debate here) this is usually done when they are very young and hospital stay usually are 7-10 days. What I’m saying in a nutshell is CAH is not usually a hospital bound bedridden condition.

          Having said that, I do believe that there is a need for something like what you might want to do. I would start at Hospital & facilities to see what their needs are. I think most hospitals have some sort of program, ours is called childlife, in which they talk with kids see what they want or need, things like that. One of my kids did a volunteer service at a local Hospital doing different things from visiting with people to delivering magazines. I would also talk with someone at your local Ronald McDonald house, I know they are always looking for volunteers. I hope I have given you something useful and you continue to want to help others(even when you get your head bit off, her bark truly is worse than her bite:).

Goodluck, Tina G