MarthaMI have two SW CAH boys- they are 7 and 10. I really wanted a big family 2 or more kids and was really put off by the CAH- I just made myself get pregnant again, I was in no way happy about it really. I am so glad I did. I just love my kids are I am fine with both of them having CAH, in fact I think for a family dynamic it works out really well, no one is the sick one or special one, they both take meds and go the Dr. etc....
I am not saying it was always super easy, but it is now. They are really normal kids, they play sports and go to school just like everyone else I know.
I did take Dex for my second pregnancy until the amnio results came back, I took it for about 22 weeks. I did not enjoy the DEX, I was super moody! hungry and could not sleep (which drove me nuts!).
Good luck making your decision. I know it is not easy.