This is a question that came up for my parents after my sister was born.  I was the first to have SWCAH and after she was born, the genetic counselors, doctors and other familiy members were adamant that my parents should not have more children (I guess because they were already 2 for 2). 

My parents wouldn’t hear of it!  Of course CAH was a hardship--but nothing that couldn’t be handled.  Sadly, the genetic counselors and our extended family were "apalled" when my mom was pregnant with her 3rd child.  In a fantastic bit of Karma, Megan was born without CAH--- (she’s our perfect, 5’8" leggy "model" sister. lol.  We point to her and say that’s what we would look like. haha)

This is something, now that Katie and I are older, we talk about from time to time.  The feeling within my family is that even if we could, we wouldn’t "give back" the CAH or change how we are.  We’ve both had the surgery and all that, deal with some control issues, our weight here and there, etc. While CAH isn’t soemthing that defines us, per se, it has played a role in shaping the women we are.  We’re both intelligent, accomplished women with a terrific sense of empathy and a maturity that only comes from trial.

I can understand the uncertainty and stress that comes from wrestling with the idea of having another child with a medical condition.  I’m forever grateful that I had a sister (my best friend) to go through all the trips to Children’s Hospital with, to drive to NIH with, to remind me to stress dose. We (our parents) never treated CAH as if it were something "wrong" with us--  It’s something that makes us special and I’d never give it up.