I’’ve written in prior that people with CAH can do anything ...be anything like a social worker that I have a degree in and I’ve never been embarassed by Having CAH. Hence, the reason that I could of waited even longer for any surgery- I’ve written that I liked what I was born with many times and does that seem like someone that is embarassed about how they were born?

When I was born doctors had no idea if I was male or female  either for a month - i have simple- virilizing and could survive longer than slat wasting  and I sent pictures of myself present day to those parents to know what someone with this condition looks no different then anyone else. This is an adrenal gland condition and look at where your focus is.

Parents write their fears of this condition but if adults that area also coping with the condition also write their concerns ..it gets like this and that is sad. 

You’ll can take the pot shots you need in this thread becuase it must feel good to get it out.

Other people aren’t in charge of your emotions/mental state and if you are scared and depressed then you are scared and depressed becuase it is inside you.

I’m actually going back to school in Jan. for pre- nursing and enjoy http://www.caresfoundation.org so I do post every so often as well as talk with people on the phone involed with CAH.

 I have this interest with CAH getting more well known with the focus on waht it is : ) adrenal gland conditon. I have SVCAH but my interest is also ..more so the LOCAH because that is 1 in 100 people. I want to have a booth at a mall handing out info about this condition.  

It certainly isn’t an ugly, embarassing disorder all the time ..I also wrote like others that I wrote that many times you can forget about it and yes I had some extra hair as kid, got teased for it and found Nair. I had some acne as a kid and there is someone else talking about that right know on the board ...as they should but I’m the one that you are upset with.    The exams were humilating but by bringing it up there is an awareness of trying for a better way to ask and do those.  The medical liturature goes on about that we are a higher pecentage of lesbians and I’m not and wrote posts about being heterosexaul. parents wrote that their childs are moody and don’t feel good and I’ve written that I’ve understood.  

You’ve actaully boosted my confidence by giving me power that any of my words matter as much as they do. I’ve read what the reasearchers go on about people with CAH and I don’t find myself in there like for example .We don’t like kids or Makeup which were and still are two things that are cool. I used to get depressed reading about what the researcher wrote about CAH becuase I don’t find myself in there. Maybe this could be a caytalyst for parents to contact and have the people with the Phd’s  write a better reflection of CAH as a a whole and while were at it? Any of you going to write to Cornell that still has the word intersex on the surgical page about CAH would you also like to write to the medical board of the Intersex Society of North America and suggest how you see CAH or site here hide your heads and toss sand at someone that writes about having a condition and only their feelings seems sad that still having feelings about this condition are swept under the rugg.

Sometimes people feel ugly and they don’t have any conditions- medical conditions aren’t a walk in the part sometimes and I’m actually pretty cute I’ve been told and If i stated that then you’d all be calling me egotistical. I’ve written every so often how cute these kids are up on the picture part of the message board. I’ve never seen and ulgy person with CAH ...yet. Or are you talking about the ugly way and what ulgy things an adrenal crisis can do ...I’m not the only one that writes about adrenal crisis on  this board and parents the adluts responsible need to understandhowto deal with one of those.

Sometimes people feel embarassed and they don’t have any conditions. Yes,  I can say that sometimes CAH does embarass me and it isn’t the way I was born where they didn’t know what the heck I was for a month (only a small portion of girl babies have that anyway) nor was I embarasses about when I had some extra hair and the boys would tease me - used to fight those boys and later in high school they wanted to date nor was I embarassed whenI had acne upon acne becasuse I have a  wonderful smile andthat acne did clear by age 16 - add bonus is that all that oil makes you look younger later in life nor am I embarasses that yep sometimes gender is a difficult thing no matter if someone goes " You’re a girl" or " You’re all girl" or " You’re not less of a women" cool that you’ll brought up this gender stuff when actually let’s say it together CAH is an adrenal gland condition. All of this your a girl stuff is enough to give one a stigma and nobody can tell you this or that because ever feelings of gender comes from the brain. Other posters brought up oily greasy hair that they stated smells and they should bring that up and anything esle that goes with CAH but I’m the one that gets ponted at for  writing it’s an ugly embarassing disorder ...er okk?embarrassing how in this condition there isn’t support of each other. I’m a cancer survivor and it’s wirld the support with that, I have a thyroid condition and the support for that is fanatical, I have Celiac Sprue and the supprt for the is sweet but this it’s tyhe parents are scared ..depressed - well I have CAH and I’ve been scasred and depressed ...will be again but I’m also strong through it - I bring up some things so maybe you child doesn’t have to deal with the same. I had this GP asa kid that would rub the hair on my arm back and forth ...it was creppy and note that many kids with CAH don’t have the extra hair.

I have fears about CAH as well being that I have it and I don’t get over the fear of adrenal crisis which in my 36 years only happened three times but I was wondering what your fears are? i have heathly respect for this condition. Anyway, I am done with this thread and feel free to focus your issues out at me becuase at least then - it’s coming out.

Happy Holidays