Thank you so much for the info and support.  I will keep a close eye out for the swelling, adverse reactions, etc.  It is nice to know what I should look for.

Also, we are about to go through DNA testing on my son and I am curious if this will tell us if either of us have it ourselves or are just carriers.  My husband and I both have some potential symptoms from our past and would like to know if either of us need to figure out if we need treatment? Being that both you and your daughter have it I thought you might have gone through some of this too?