I’ve participated in both the Natural History Study and the Excersize Study.  I can’t say enough about all of the wonderful people at NIH  (and the Inn).  While the trips can sometimes be a bit long (usually a few days), the benefit of seeing one of (if not the) best endocrinologists outweighs any inconvenience. It’s very VERY helpful to get some insight and an expert opinion while contributing to the body of knowledge about CAH.  I recommend that everyone make the trip if they can.

If anyone has any questions about participating in these studies, please feel free to call the CARES office and speak with Kelly or me.

Best wishes to all for a happy and healthy holiday and new year!

Erin

CARES Foundation, Inc.

866-227-3737

Disclaimer: Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider. You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only. CARES Foundation, Inc. does not specifically endorse or recommend these physicians.