ValerieHey there - me AGAIN!
I am feeling a bit overwhelmed and stupid about this whole CAH thing and am SO THANKFUL for all your info. It has been a tough couple weeks and feel a bit desperate for answers. If there are other places y’all recommend I look, read, etc. I would love to hear them!
As for getting to NIH, how do I go about doing that? Also, I am confused as to the results of genetic testing. Will my son’s test tell me if I should pursue my own ACTH, etc. or I am seperate all together as far as my own diagnosis? You said that I would also get genetic testing there for free. Does that mean I, too, would need to have a genetic test done at some point? Do I ask a Dr to pursue this or am I just being a hypocondriac in advance of any genetic evidence from my son’s test?