MarkI was diagnosed at birth in Seattle Washington. One of the few in the late 60’s to live to tell about. I have a great history of living with SWCAH as a man. If anyone has questions about male SWCAH I would be more then happy to answer.
For the most part I always and still do have good endo doctors, who loves to talk about SWCAH issues with me (sometimes I felt like a science project as a child). I still from time to time speak to my pediatric endo doctor, he is retired now.
I have experienced most of the drugs talked about on message board and have my opinions..... but endo doctors should know best.
I would truly like to help any parents with questions about their sons, and what to look for as they go thru puberty and into marriage.
I once had a endo doctor tell me I would not be able to have kids do to low sperm count (common with CAH males). I have two children, none with CAH, but carriers.
Have a happy new year.