hi mark i to am raising a son with swcah, he is five now we found out  when he was two weeks  old. yes i have some question for you first do you get tired alot and how are your mood swings? MY SON ALREADY HAVE UNDER ARM HAIR AND SOME ON HIS PRIVATE parts. his doctor had to increase his meds last month as he was growing to fast. what will i have to look to in the future as for as his health . before he was born i never heard of  cah. but i had to learn in a hurry. my daugher and the baby father is a carrier this is her only child but his father have three other kids but they do not have cah. the doctor said before my son and his wife have kids they will have to be tested. do you have any other sister or brother with cah? looking to  hear from you soon from a mother with concern.