Anybody out there?

Help!  I have a Vietnamese friend who speaks very little English.  she has two boys (19 and 10) who have congenital adrehal hyperplasia.  she doesn’t understand the disease very well but feels terrible because she believes she is a terrible mother.  I want to get her in touch with other families who speak Vietnamese to help her.  She has huge difficulty understanding the condition.  (In fact, she still does not know the name.)  I want her to know she is not alone.

Can anyone point me in the right direction?

P.S., does this condition affect lifespan?