Dear Michele,

Was really just answering the first poster. Students learn and they help the next generation but the thing is that I never wanted that surgery and was sliced and diced pushed into am ideal that I never was ready for and the worst exams were the ones that were one on one with the endo and the encounter with the surgeon when I was ten and checking his work. If I would of been accepted  for me then maybe things would of been different. It’s liked being marched by scalpel into something else. I don’t expect others to get it and I could never understand others.

 

They apologized which I think is a classy thing and realize that maybe now it is best to ask the human that owns the body. All the interest of what was between my legs by grown men and women to force me into whatthey needed meto be was just to much for a kid that should of been more concerned with schooby doo and slinkies. I knew how i was born becuase I wasn’t sliced until I was five and yes it was done for period flow but that wasn’t going to start until 11. My parents really  weren’t that concerned with the way I was born but some Dr at the best hospital in the Mid West pushed that Oh this parent is going to be gender confused when really I know who I am the endo taking his peeks just was violating but was a tip of their concern and this first poster  was asking how do you tell and those exams are a red flag. You wrote that your teen knows what she looked like and I think this first poster was asking how and when did you bring it up to them? I’ve been told by doctors, nurses and read that this condition is a trauma to parents as any condition a child would have. I was given up for adoption becuase my bio-mother/her family couldn’t handle CAH ...so anyone with the last name Goethals from Michigan? I am the family skeleton ...lol .

 

I wrote the other posts due to real experience that showed that people don’t use the word prader scale but rather what they learned in school what from the med staff that I’ve talked with is everything but prader scale .....Yeah, I was going prader scale to the old nurse and she responded penis and I’m like so what for me for using whatever terms prader scale is just a polite term that tries to hide what this is. In my medical records it went back and forth to phallus to pseudo-hermaphrodire to ambiguous genitals and also went on about the clitorectomy ( I had one doctor ask me to spell that once), vaginoplasty, and urethroplasty - or as I like to refer to as chopped and dropped.

Most do not like me on this board and you don’t have to write me back.

I just wish the novelty of how we might be born with CAH would were off and the focus would be the adrenal gland. .... Had another Doc that confused CAH with Androgen Insensitivity Syndrome and told me good job.