re: MUNCHAUSEN’S SYNDROME BY PROXY
Jan. 13th, 2007   5:24pm

I was not accused of anything....

But...

13 years ago I took my SWCAH daughter to the ER while visiting my mother-in-law over Thanksgiving. My daughter started throwing up and after a while I realized she had been way too long with a dry diaper too.  I had already injected her with solu-cortef because of the vomiting. But, I knew I needed to take her to the ER because of dehydration.  Once we were there, I explained her conditon - and that I had already injected her with solu-cortef, but that she needed IV fluids... That is when the ER doctor began to interrogate me. I explained that she could go into adrenal shock if someone didnt do something with her and not interrogate me.  He even asked me if I knew what condition she had because of the term hyPERplasia vs hyPOplasia... It seemed to be a nightmare to me.  I was being treated like I was on trial. I thought of Munchausen’s syndrom by proxy because I had recently seen a tv show about it.  I demanded that he get an endocrinologist to the ER immediately and asked him to call my daughters ped. endocrinologist at home. The doctor set me and my daughter in a exam room and I could hear  him calling around asking for treatment advice.  Soon he found an endo who came in to treat my daughter - with IV fluids like I had asked him to do.  A little later our home endo called.   I did get an apology from the ER doctor and he actually spoke to me like an equal from then on out. He also suggested that I take my daughter home asap in case she became sick again so she could be treated by her own doctor... to which I replied "YOU THINK? I wouldnt think of staying here and fear of having my daughter treated by you again."

The valuable lesson I learned by my experience was this, always give the solu-cortef injection BEFORE you take your child to an emergency room.

karenp
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