I’ve been in that situation. 2 years ago, I thought I had just given birth to a baby boy. We named the baby, made all the important phone calls, and were just getting settled in with our new baby when we found out this news that was devastating to us. We found out that we ’might’ have a girl with amb.gen. and cah...we had NO idea what that meant. They transported our baby to the childrens hospital nicu where we soon joined her. People kept asking me if we had had a boy or a girl and I would just break down into tears..I didn’t know. Being in the nicu, there were lots of babies there that had it much worse than she did...some had been there for 3+ months and were still half the size of her, some couldn’t eat on their own or had breathing tubes...it made us realize that we didn’t have it THAT bad...but still, it’s a life altering condition. It affects every person differently...some worse than others. Hell, I just spent a week in the hospital with my 2yo for an illness that normally wouldn’t put a child in the hospital, but because of her cah, it did. It wasn’t actually life threatening, but it still affected me and my family, especially my daughters. Yes, we should be thankful that we (or our children) dont have something more severe, but you have no idea what everyone else goes through or how easy they should have it.