I to suffer from SWCAH and I’m not trying to be insensitive.  I’ve also had to go through the fact that I have a 2 month old daughter who since she has been born has had to go to the pediatrics doctors and have them take her blood work every week since she has been born to see if she has SWCAH too.   They have called me multiple times to go there in a week and then when they have trouble getting her blood, I have to listen to her scream and cry.  Now for some of those who keep saying that this is not something to post on a CAH board when there are people with babies on here.  I have one myself and I am dealing with a lot of drama and other pain watching my little girl go through all of this.  But that doesnt mean that I can’t look into the reality for the fact that this could be a worse experience.  I could have heard that my daughter had a larger tumor on her brain and that she only had 3 weeks to live.  I count my blessing that CAH is all she has and that we are able to treat our children, parents, friends, or anyone else with this disorder. 

 I’ve had to deal with a lot of things too.  I have had to have the reconstructive surgery, be hospitilazed for an adrenal crisis, and dealt with a intolerable pregnancy.  But I know from my own personal experience that I have sat there and said time and time again.  "I hate having this and it sucks, I wish that I had never been born."  But then my mother has told me over and over again, it could be worse.  And you know what..for myself, it has made me feel better, and I thank God for allowing me to only have this, rather than something that could be even more traumatizing. 

 

This may be a CAH board and we may be able to feel sorry for ourselves, but I am here to say that "bitching" about the problem is not the answer.  I’ve bitched about it long enough and I’m thankful that this is all I have to deal with.   I’ve also sat here and felt awkward around men because I felt like I was abnormal and not the type of female they want.  So to try to call me out and act as if I’m insensitive is totally wrong.

 I’m glad I do not have to give my daughter shots and myself shots every single day, and also take her sugar levels.  To me that would be far more painful to watch my daughter suffer, and I myself have had done and know it is painful to have blood suger taken.   So if you guys look at this and get mad, thats on your own problem.  I’m at least going to live by this as an example that it could be worse.  This is just one disease that I have read about that could’ve made my life a little bit more complicated. 

 

Thank you to those of you who actually understand where I am coming from on this post, I appreciate you taking the time to be cordial.