Well to be totally honest, I find Liz’s post upsetting, she is obviously very lucky in the fact that her/ or her child with CAH has been well controlled.  My son had major problems with both absorption and metabolising his hydrocortisone, before that years of battling with both weight and the emotions that brings from being bullied, his weight was no fault of his, it was from being overdosed.Then he was so ill for two years he could not go to school he became so thin and frail due to lack of cortisol, with a constant debilitating headache, his friends were afraid, as I was, and our GP, that he would die. This was due to his unusual metabolism and puberty, a time when he should have been out enjoying life, never mind the weeks he spent in hospital going through test after test, bloods, CT’s, MRI’s - left with no muscles, a deformed spine - he survived but there are many others who use this board who have lost children, as Cherry and Sherry mentioned.

 

Since when has illness been a competition?  It is like trying to compare which cancer is worse, or if a stroke or heart attack is worse, it all depends on the individual case and how the illness affects that person. NO illness, especially a chronic one, is pleasant to have......... if I had the choice I most certainly would wish my son did not have CAH and I don’t feel blessed that he has it either.

 

I think it was a very insensitive unjust badly worded post, if it the title had been written differently, people would have felt great empathy!