Kathy,

 

You want to talk about being teased?  When I was in HS my doctors decided to put me on Dexamethasone and I gained 60lbs in matter of months.  I got stretch marks, got called fat and teased.  Might I remind you that HS is a bad place to get teased.  It sets the record for how bitter you become and it caused a lot of problems in my home life.   I wore baggy clothes and kids still called me fat and told me that I wore tight clothes.  Yet I was wearing sweat pants, baggy GUYS t-shirts, wind breaker pants, and anything to hide the fact that I was 175, 5’2" and had a moon face with pimples.  So you want to talk about problems?  I HAVE NOT BEEN REGULATED GOOD.  Stop being hypocritical when you do not know the situation of how I was treated in HS, how I was regulated, and how people treated me.  I have dated guys who have made fun of me because of disease, I have met girls who made fun of me, and I have had people call me a liar for saying that I do not make salt.  So for you to pass judgement on me and say that my life is EASY.  It’s by far easy and has not been regulated at the best.  And as for my daughter!  Ever since she has been born she has had a needle shoved into her arm, more than once every week since she has been born.  She is only 2 months old and knows way too much able getting heal sticks and needles shoved in her arm.  The first day that they wanted to take her blood, she was only 5lbs 7 oz’s and you want to know how tiny her veins were?  Too tiny to get blood.  They tried both arms TWICE, then they went on to decide they’d do a heal stick on both feet.  So dont sit in judgement on me.  Especially when I have had to listen to one of my own family members make fun of the fact that my daughters hair fell out on the top of her head because of the fact that the DRS took her off the hydrocortisone before they knew for sure if she has the disease.   So her testosterone levels went up, her potassium went up, and lots of other things have happened.  Hell they didnt even notice that her labia had fused together. 

At least I can count my blessings even though I have had it rough.  I’ve been emotionally beat down and I have told my mother I wanted to commit suicide because of this disease.  BUT now that I’m older I can count my blessings and I thank my daughter for that.  She has taught me to realize that she could have come out with a tumor, cancer, diabetes, or some disease that could take her life.  I’m thankful that my daughter has this because she could be like my mother an have rhuematoid arthritis so bad that she is unable to walk, her hands are drifted, and she had to get both knees replaced, plus the cartiledge in her arms and joints are gone.  So for you to sit there and pass judgement on ME is just assinine.  I may have worded this wrong and for that I’m sorry.  But I’m not sorry that I do feel that I’m lucky that I have survived this, I take medication, and we’re trying to figure out how my daughter is doing and if she truly does have this disease.

 

It’s not a competition and by far I am not saying my case is worse than anyone elses.  But I do not appreciate you not walking in my shoes before you pass judgement on where I came from on this.