Kathy,

 

I’m sorry that your son has faced a lot of issues and also sorry if I worded that wrongly to where you misunderstood me.  I am not saying that we should take this disease light hearted, but I am saying that we should be thankful that we are able to function in life normally (for the most part).  We are able to enjoy a lot of things, but we still do have to be cautious.   But at least we are capable of having a medication that can be given to us to where we will be able to live without dying.  As for me being positive, it didnt come about until after I had Ayrianna.  She has been a life changing experience and has helped me to realize that there are parents who face far worse than what I have.  I watched too much Discovery Health and saw children born with tumors who were going to die.  And that to me would be terrible, especially having a horrible pregnancy like what I had.  I couldnt have lived with myself, if she had died after going through extreme morning sickness, back pain, gross stretch marks, and lots of other things. 

It sounds like he is lucky to have had a doctor that actually took the time to care about him.  Unfortunately in my town, we do not have that many doctors whom specialize in endocrinology, and the one has left a mark upon me.  I can relate to him on feeling fat because ever since I got fat, I have never felt thin.  I got down to 115 and was in a size 3 in juniors, yet I still looked in the mirror and saw the girl that was 175, pimply, and gross.  The only thing that bothered me most about this disease was that I never had any CAH friends whom could relate to me and if I did, I think it would have made things easier.  Your son is lucky to have a caring mother such as yourself.

I hope that all gets better with your son, he sounds like a very strong individual because it wasnt just the Dr’s who saved him, it was him as well.  He is strong, he fought to stay alive, and that is what matters.

 

Liz