First of all I want to say thank you to whomever is responsible for this board. I have learned so much more here from you than I have from my doctors. It is very encouraging to hear your stories and know that I am not alone.
On December 14, 2006, I gave birth to a beautiful baby girl. However, there was a problem. Her parts looked like boy parts. Doctors were called and test were run and a long list of "possible" diagnoses were told to me. The final diagnosis was SWCAH.
My pediatrician and my urologist are phenominal, however the endocrinologist that I have had to deal with is terrible. I don’t have any faith in her ability to treat my child. I am currently trying to find another endo in my area.
My reason for posting this evening is that I finally found a pharmacy that could get the Solu-Cortif Injection and went to pick it up today. The pharmicist was explaining that the dosing was not given in the prescription and I would need to call the doctor. He said that I wouldn’t give the whole 100 mg injection to her because that would be an adult dosage. However when I got home and looked over my letter that the endo gave me if I had to go to the ER for treatment it states "Her parents have been instructed to give 100 mg of hydrocortisone in the event of vomiting or any severe illness that will take more than an hour to reach medical attention. They have been given a vial and a syringe."
My daughter is 1 month old and only weighs 8 lbs. This dosage does not seem correct. Any advice?
Also, does anyone have the medications compounded? I was told this would not be good because of the "stability" of the steriods.
Thank you for any help in this matter. Thank you again for offering your support and advice. It is comforting.