LizWell, I just got done doing the genetic testing done on my daughter. All the endocrinologist said to me was that her levels were high, but they didnt want to make a full diagnosis, so I said lets do a genetics test. As for my husband he is stationed somewhere else, and I have never known an exact way for him to get tested. As for CAH, I have always learned that too. But at the same time with having CAH and having a none CAH parent, my endocrinologist had stated to me that there was a 50% chance she would have it and a 50% chance she wouldnt. I would like to get my husband tested anyway, and I need to figure out how to do that.
And no I do not have AIS, I have had CAH and was diagnosed early on. I wish they could have done the same with my daughter, but they have been totally bad about this situation and I would agree with most people, they do not take CAH seriously. I had told my endocrinologist before she was born, I wanted to get this taken care of ASAP, I had told my OB doctor the same thing. So far this situation has been bad, but at least I can be thankful that she so far has had a clean bill of health and I appreciate that.