AnonAlthough I agree with you, I think in all fairness, people should also be careful how they word things when they post, the title of the post is upsetting to some of us who have lost a child with CAH, because to us there is nothing worse to us, so it does work both ways. New parents really also need to be made aware of the importance that this can happen, many on this board were not even issued with an emergency kit. Many are let down by the medical profession, I for one was.