Anon, I am so very sorry for the loss of your child.  I do not know what that feels like.  The point of my post was to try to slow everyone down.  Think, ask for clarification, etc.  Liz meant no harm, she was not intending to minimize anyone’s pain or personal experience by her post and perhaps it came across the wrong way.  I KNOW that everyone of us has an incredibly painful story in us (at least one!).  That is why I was trying to get us all to recognize it and create dialogue instead of angry words and people wanting to leave the board.

Like I said, I have not lost one of my daughters to CAH and I can’t imagine how painful that was for you!  It has been hard enough to be on the brink.  I CAN say, through this board (and maybe it was you!) brave mothers have shared their experiences and I have learned from them.  One child died and the brave mommy posted about it.  I couldn’t sleep that night from what I read.  THANK GOD!!!!!!!!!  I wasn’t asleep but laying there trying to.  I heard Ellie’s slight wimper.  Found her puking on herself, convulsing, nearly unconscious with a fever of 106.7.  At the ER the dr said had I waited for the ambulance, she wouldn’t be here today.  I thank God she is here.  And I thank God for all of you sharing your experiences.

My post was not to debate the appropriateness of Liz’s post, although I think her optimism and positive outlook could do us all good, I was just trying to get people to think before they type.  That’s all.

Blessings to you!

Tonia