Thank you to everyone. You guys are just the best. It is so good to know I can come here for support and prayers. It has been such a hard thing to endure. She suffers so much that it kills me. A part of me prays she goes on to heaven where she can breathe the clean air without a struggle. The selfish part of me wants to keep her here so she can continue to be a big part of our lives. When my daughter was born in 1997, she was my rock. She came over almost every day that first month that I struggled, to take over where I could not. She was the one that traveled to the doctors appointments and tests my daughter endured. I can still remember taking my daughter for her first blood test at the lab when she was and infant. I can remember my daughter crying her heart out as they poked and poked for a vein. I came out to my mom in the waiting room. My daughter finally stopped crying, and then I went to my mom and sobbed in her arms like a big baby.  I am so thankful I have had her so strongly in my life. So to all of you that still have your moms, get off this message board and call them tonight. Tell them how much you love them. And if they are in heaven, send up a prayer of thanks to them.    

(to Kat- I posted back to you on the second page we were posting back and forth to)