My name is Stephanie. I live in Fairfield County, Connecticut. I have a 10-year-old son and a 6-year-old daughter with Non-Classical CAH. My son was diagnosed in July 2004, so I am told he was identified late. My daughter was dagnosed right after. I have an 8-year-old son who must be a carrier (oh joy!).  It took me a long time to figure out what CAH was, cause my original endo kept calling it 21-hydroxylase deficiency and I could never find anything about it on the web. Then, as we were going to yet another Doc, he called it CAH. That night I found CARES, and within a month I was at the CARES conference in Indianapolis. At this years conference in Jersey, I found out about this message board. I have talked to my endo here in CT and Kelly Leight, and I am going to try to get together a mini-conference at Yale in the spring. This conference is still in an embryonic stage. I have an ex-husband who has not really invested himself in the kid’s CAH (denial), and does not have a good grasp on how to care for them. Or why my son was oversuppressed by the first endo, and as a result gained about 35 lbs. I want to do this conference so I can get my ex to go and learn about CAH. He will never go to a national conference. My other reason for trying to do this, is to meet local people. I feel pretty alone with juggeling my kid’s health. The conference is like an island of relaxation for me, talking to people who are in the same boat. Would anyone be interested to come to this conference in Connecticut? It would be a shorter day, with only one room of talking. Keep it simple. Any suggestions?