It’s so interesting to read where everyone is from.  I’m Pamela, my daughter Justina is 10 with SWCAH.  Her sister is 14, non-CAH.  It was overwhelming at first but has become more manageable over the years, thanks in large part to this message board/support.   I’m composing a letter to our local hospital to get the ER staff educated about CAH.  After years of going to the same ER. they still don’t get it.  I’m hoping to bring about an awareness of her condition that may some day help another child born with CAH out here.  We live in NY, Eastern Long Island, far from NYC and all the teaching hospitals.  Thanks.