Hello everyone! I can’t wait to find the time to read all the posts above. I have a daughter with SWCAH that is 9 years old. She was diagnosed one week after her birth. The hospital she was born at misdiagnosed her. Not only did they wing it and decide she was male after she was born with ambiguous genitalia, but they also missed her CAH diagnosis by a mile. My gut told me she was a girl. She even looked like a girl more than a male. I still get angry with myself for agreeeing with them. Their excuse for all these mistakes? It was a summer, and it was the weekend. The staff wasn’t all that great to work with. Hmm. On top of the missed diagnosis, they ALSO sent my daughter home dehydrated! After many days and nights of crying, I took her to her new ped. She had lost weight, and looked horrible. I thought it was colic. Her ped. had them fax her medical files to her before the appointment. There it was, her sodium level at discharge that Monday was dangerously low. It was Thursday of that week. If I had waited even by evening, I would have had a dead baby. It still sickens me to think of what one mistake could have cost.

BUT today I am blessed. She is normal crazy 9 year old girl. I found this board when she turned 2 or so. This board has given me tremendous information, tremendous support and tremendous friends. This was the answer to my prayers when my daughter was first diagnosed. I felt SO alone. No one had CAH I knew. I felt like I was in my own CAH world. No one spoke my language. I found this board and I felt like I was part of the world again. Someone to bounce your feelings or worries off of and they could say I KNOW I HAVE BEEN THERE AND YOU WILL GET THROUGH THIS. What tremednous difference in my life it meant. To my daughter’s life.  So to all those newcomers, WELCOME! Your prayers have been answered.  God bless!