I think if "Joe Schmoe" came on here and asked for us to fill out a survey or something like that I would be suspect.  BUT we are talking about CARES.  They have done more for the progress of treatment and care and coordination for CAH than ANY organization ever.  Not to mention their staff is the MOST compassionate and caring group ever!  Please take the time and fill out the survey.  They are only using the info for OUR good.