StephanieI wrote a giant soliloquy on this the other week. Scroll down, Since that time, I found out that based on my income, I am required to buy 4 vials of growth hormone within a calendar year (that is 12-days worth based on my son’s prescription). I have to call up the 3 distributors and find out who sells it for the least. I have no clue what the going rate is.
My son is 10 1/2 years old. We are not being consistent with his 7th day off from the medication. But he is consistently taking it. Hopefully I will see results in at least 6 months? He is fine. It does not affect mood or sleep (or at least not yet...?).
I am anticipating him to be on this med for at least 8 years (ugh).
His CAH is the reason he is on the medication. Having CAH already robs you of several inches in growth. Being oversupressed robs you of more inches. That is 2 strikes against my son already. I have no choice. If I don’t give this to him, I will have never done everything in my power to make him whole? tall? successful? confident? stress-free? happy? healthy? You name it.