JoanneHi :-) when I was little my mum and dad never really told anyone about my condition,I have SWCAH. They told the school that if I ever became ill they should be contacted but they never went into why, as it seemed unlikely that I would get anymore ill than anyother child. It wasn’t becasue they was ashamed or anything they just didn’t fell the need to be so overprotective. I was on many clubs and sports teams,we would go away for a week at a time, just took my meds and got on with it :-)
I understand that some kids are unstable on meds, but I have to admit that by the time I was 6 years old I was never unwell again with my CAH, Im now 30 :-) I had other child like illness but never stress dosed .I do somethimes wonder if parents flap around more than they used to and wrap kids with CAH in cotton wool, often because of what they read on the internet which seems to make the condition a lots worse than what it is :-/... after all it does seem that every ailment from bad knees joints to anxiety is down to having CAH :-)
Take Care x