Our CAH son is 9 and we have always made his condition clear to all who are around him. His teachers all have been given a short paper that tells about CAH and what to watch for if he becomes sick or act differently. When he goes on field trips they always take along his meds and make sure they have my phone numbers on them in case they need to call.

For sleep overs, the first one was hard, I had to make sure I trusted the parents would give him his meds and make sure to call me if he were ill or vomited. So far everythings been fine.

When it comes to trips for school that will one day come, he will need to make sure he has his medic alert bracelet on and meds with the adult in charge. I plan on going on the 8th grade trip in another few years and to as many away from home trips that we can.

In our case just making sure he knows what to look for and that the adults in charge of him understand what to look for makes me feel better. When he’s old enough to go out with friends I’ll make sure they understand how important it is to know the signs of adrenal distress.  It’s hard but I have to let him go a little at a time. Raising healthy children is hard enough, add a disorder that has the potential to be life threatening and it’s even worse.  We all do the best we can. ((hugs))