What is GHD if you don’t mind me asking?

Also yes this disease is congenital, meaning: your child was born with this disease. Did they say what type he has? Like Congential Hyperplasia due to a 21 hydroxylase deficiency? Is he the salt wasting type? When was he first diagnosed? It sounds to me like he was diagnosed as "Late Onset" if he has growth issues already. What meds. is your son currently on?

To explain the congenital thing I will give you my best rendition.  You have a gene and your husband has a gene that lacks chromosome number 6. When we conceive a child together, mom has genes and dad has genes. They are supposed to fit all together like a puzzle. Where one gene is absent in one parent, the other parent usually has the gene that the one parent is missing. Therefore fitting the genes together like a puzzle. In CAH one parent is missing a gene and the other is missing a gene. With that absense of chromosome number 6, or that lost puzzle piece, the puzzle doesn’t fit and in turn causing CAH. I am no doctor but that is the best way to describe it. I am sure others will elaborate or add to this. Anyone out there that wants to correct me if they find error in my formula let me know.  Carol where are you? Carol is our expert mom here on CAH. She and an endocrinologist wrote this excellent book on CAH. You can purchase it through this website I believe.