Why are you here Wan if CAH isn’t a problem for you? Usually people seek out message boards like this to learn more about things or ask questions about a certain subject. You must have been needing something.

As for obsession. Call it what you want. I call it never leaving any rock unturned so I can make sure my one and only daughter has the best care in the world for her CAH.  Here we are. Parents of a child that has this rare disease. Walk into an E.R. and ask what CAH. 10 to 1, you will get a blank stare. Been there done it. So if the medical field is still researching CAH and still scratching their heads over what the best treatment is for our children and what the effects are on them, then why can’t we compare notes here and do our own mini reasearches? I know when my daughter grows up, I want her to know I researched every aspect of her disease in order to make sure she had a healthy, happy, future. If that means coming to a community that has CAH in common, then that is what it takes for me. If it means asking the question if my child’s left leg is crooked, and her eyes are blue because of CAH then I will ask it if it gives me peace in asking that question. I can’t imagine a scientist never asking a question because it may not be connected to his or her study. CAH is not black and white. That is how we learn. We live, we learn, and we share what we live on this board. In this community. This isn’t diabetis or cancer where there is so much research done daily that there are no questions left to ask. This is CAH. There may be a lot of questions you feel are silly or obsession. Being a parent of a child with ANY disease will cause you to ask questions. This is the unknown. Some on here are brand new to something you have been used to for what did you say? 30 years. You lived it, you know. These parents are just months or maybe even days into this new world of CAH. That is scary in itself. My first questions to the endocrinologist was, "Is my child going to die of this" I continue to ask questions and never will stop until I get my satisfation that my daughter has the best care this world has to offer. Obsessed, nah. I would call it my mission.