Hello all-

I have a 2 year old daughter with SWCAH and I know this topic sounds a bit wierd. Specifically, who takes their temperature when they wake up? However, on a few occasions over the past several months, mainly due to her having a fever when sick and so forth, my wife and I have noticed once she has recovered, and we’re taking her temp for what amounts to be the final time with the fever broken when she has woken up on that following day, it has ranged anywhere between 94-97 degrees. So in passing, we mentioned this to our endo and he was ’perplexed.’ The interesting thing is that when it has been as low as 94 degrees, which is around the hypothermia stage, she has no visable signs of being cold (no shivering, hands and feet are not white, and so forth).  We have a space heater and we are using it in her room and we’ve noticed it has helped in terms of her waking temp (now around 97 degrees regularly) but that does not explain to us or the endo why her body doesn’t react to the cold. She does sweat so we know the other end of the spectrum works but our endo, who is extremely experienced particulary in CAH, says he’s never heard of this before. As mentioned above and as he cited, nobody really takes their temp regularly when they wake up so there are no studies as such. He’s doing some work to try to get into it a bit deeper and he and our pediatrician suggested we do a blood test for a hypothyroid condition (results pending) and check her glucose level in the morning (on the low end of normal). So I thought I’d put this up to the board to see if anyone else has stumbled across this - because you pretty much would have had to stumble across this as we did. And for the record, our thermometer is not broken. That is the first thing the endo and ped thought when we told them.  Thanks in advance.