MarthaMI do not believe there is more evil in the world. We live in a very safe and productive time. Look back at history and you will see real evil and distress. I think people think there is more evil now...I do not. I let my kids do everything. Go to camp, with me or a nurse...I let them walk home from shcool, across a busy street...etc....they play sports etc....
I do not downplay their medical condition they are aware of the seriousness of the condition and the necessity of taking good care of themselves- they are 8 and 11. Otherwise we have just a regular life.
I do realize some kids do better than others...but you have to what you have and then make the best of it! My neice was just diagnosed with type1 diabetes- yikes that is way worse!
I do feel this boad is great and all the new people need a chance to be scared and learn from others mistakes, I have made a couple. Also I beieve thanks to CARES all CAH people will and are getting better care. Information is power, I did not have the internet when my kids were just born and I did not have access to any informtion and we had a really bad (malpractice bad) endo. I just had a gut feeling things were not right and swithced Drs., very limited choices in a small state.
Just my two cents.