guess if you want to think that knowledge is bad then that is your choice. I found that I can learn a lot about CAH from people who have lived through it. 

When I read that grown men had problem with their bones I started giving my son calcium chews, as it was stated before why would I wait to try to help with this problem until it’s actually here when I can help my son ahead of time?

My sons CAH hasn’t been a problem for us but I have a great friend here who has two children with CAH who are not so lucky. It differs for each person. Every bit of information that I can get on CAH helps me, help our son. Since he is one of the five most important people in my life and it’s my job right now when he’s a child to do the best for him that I can, I come I read and I learn from what has happened in other peoples lives. I’m smart enough to know I don’t have to experience it myself to learn from it.

 

Be thankful and blessed that you have made it this far. It’s not luck, thank God that He has been watching over you all of these years because from what you have written that is the only answer that I can see for your still healthy life.