What surgeon did you go to???? I want to call or write him/her on behalf of the CAH community. There have been numerous scientific papers written over the last several years saying that dilation should NOT be done by the parent in children. It is uncomfortable for parents, may be scarring to the child psychologically, serves no real purpose since the child’s vagina will stricture in any event, and she is not going to use her vagina for many years to come. This is not current standard protocol--it is "old school".
Please call our office on Monday and I will look up some articles for you to copy for the surgeon.
Kelly R. Leight
Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
2414 Morris Ave., Suite 110
Union, NJ 07083
Office: (973) 912-3895
Toll free: (866) 227-3737
Fax: (973) 912-8990
Email: kelly@caresfoundation.org
Website: www.caresfoundation.org
Disclaimer:
Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services. The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider. You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only.