wow!your daughters story sounds so identical to my daughters. My daughter who has swcah was 4 when they discovered her high blood pressure. She is seven now and just one week ago they took her off the blood pressure meds. I am watching it closely and so far so good. I have yet to receive an answer as to why this happened. They reduced the florinef drastically and even then it took forever to even see a difference.  Her endo said she her florinef dose is to low according to her blood tests, but was waiting to raise the dose until the blood pressure situation was under control. So here it is three years later and I still don’t know the cause of my daughters high blood pressure. I am curious of which endo your daughter sees. My daughter also in seen by an endo near seattle.

Jenny