MartaI would like to hear from adults that have lived with SWCAH. Did you have problems reaching an acceptable height, problems with your weight? How was or is your life been effected? I have a 4 year old son that was diagnosed at birth. He seems to be doing very well and we are very careful to be sure he recieves his meds and he has his blood checked every 4 months. Our endo assures us that he should live a long a normal life. But again, it would be nice to hear from someone who has and is living it. I would appreciate any response.
Thank You,
Marta