Hi!  My name is Scott.  I have lived with SWCAH all my 22 years.  I lived a ’normal’ life.  I have reached a respectable height of 5’9".  My weight is 160 lbs.  I have been very fortunate with living with my condition.  I played sports through high school.  I didn’t have any problem learning, I always got good grades.  I am preparing to graduate from college with 2 bachelors degrees.  If I can give you any advice, it would be to do what you are doing.  Watch him closely.  My mom was like a hawk, anytime my color changed or anything she would have me to the doc.  I had tests and check-ups several times a year.  Now don’t keep him from living his life.  Although my mom was careful, I played all the sports I wanted, and I attended sleep-overs regularly.  I hope this helps...let me know if you have anymore questions!  Email me if you like... jsn122@yahoo.com

Have a great day!

-Scott