MarthaMI have two SWCAH boys, 8 and 10 years old. My youngest struggled when he was younger with height and weight issues- he was 8lbs at birth and 20 inches, which put him on the big side, and he just slid off the chart for height and weight- I think his weight at one point was 0% and height was at about 10%- his levels were usually very good, although he did need a lot of florinef (4 tablets per day). Anyway he is 8 years old now and he is at about 25% for height and 50% for weight, he is a great little athlete and is a ton of fun to be around. I am not sure why he dropped off for that time period- really from 6 months on. He has recently really caught up- good bone age always????
I know it is hard not to worry -- I worried and he was my second CAHer. If your sons levels are good try not to worry- kids really do come in all shapes and sizes.
Good luck to you.